The leading capacity-building event for cancer patient advocates is back in person.

FRANKFURT I 01 – 04 JULY 2023

4

DAYS

3

TRACKS

25+

SESSIONS

ABOUT THE EVENT

After almost three years of virtual training, the leading capacity-building event for cancer patient advocates returns to a face-to-face event.

The WECAN Academy was initiated in 2019 when two leading capacity-building programs in patient advocacy were combined, the WECAN Smartstart for new and novice patient advocates and WECAN Masterclass for expert patient advocates. The WECAN Academy offers training for advocates in all skill sets in the three knowledge pillars “Advocacy Tools & Skills”, “Healthcare Systems, Policy and Access,” and “Research and Data”.

Within these pillars and the 4 days of training in July 2023, our attendees will experience an increased level of complexity.

This unique format gives an opportunity to those patient advocates who are starting their journey in the field of advocacy to learn the basics and meet the experts as well as providing a space for networking. For the more experienced patient advocates, the WECAN Academy 2023 training event will offer room to exchange knowledge and dig into the topics that help to make patient advocacy even more effective.

The sessions will be interactive, straight to the point and applicable to many different areas of patient advocacy

VIEW THE AGENDA

LEARN

Hear from expert patient advocates as they share best practices and experiences within the three pillars of knowledge.

COLLABORATE

Meet with patient advocates from many different disease areas that comprise the European cancer patient community.

ADVOCATE

Leave the event equipped with the knowledge to make an impact and drive change in healthcare for cancer patients.

AGENDA

Day 1

  • Check-in and registration

  • Setting the scene: Why are we here and basic advocacy principles

    Advocacy Tools & Skills

    Hans Scheurer and Jan Geissler

  • Drug development basics

    Research & Data

    Jan Geissler and Maria Dutarte

  • LUNCH

  • Access & regulatory basics

    Healthcare Systems, Policy, & Access

    Kate Morgan

  • Inequalities basics: Mapping and understanding patients rights

    Healthcare Systems, Policy, & Access

    To be announced

  • COFFEE BREAK

  • Engaging your patient community

    Advocacy Tools & Skills

    Anita Kienesberger

  • Develop good content, presentation, patient materials

    Advocacy Tools & Skills

    To be announced

  • Setting up disease specific educational programmes

    Advocacy Tools & Skills

    To be announced

  • DINNER

Day 2

  • Evidence-based advocacy basics

    Research & Data

    Teodora Kolarova

  • Reading & interpreting scientific data, part 1

    Research & Data

    Gilliosa Spurrier-Bernard

  • COFFEE BREAK

  • Reading & interpreting scientific data, part 2

    Research & Data

    Gilliosa Spurrier-Bernard

  • Basics of biobanks & registries

    Research & Data

    Derick Mitchell

  • LUNCH

  • Health economics basics: concepts/ common problems

    Healthcare Systems, Policy, & Access

    Zack Pemberton-Whiteley

  • Healthcare ecosystems and stakeholder management

    Healthcare Systems, Policy, & Access

    Alfonso Aguaron

  • COFFEE BREAK

  • NGO governance: managing a crisis in your org

    Advocacy Tools & Skills

    Ananda Plate

  • NGO marketing and communications: media, social media, communication with stakeholders

    Advocacy Tools & Skills

    Alfonso Aguaron and Mirna Tomasevic

  • DINNER

Day 3

  • How to improve patient relevance of clinical trials and how to review clinical trial protocols

    Research & Data

    Bettina Ryll and Rachel Giles

  • Jam Session on Hot topics in oncology

    Research & Data

    Bettina Ryll and Rachel Giles

  • COFFEE BREAK

  • PROs and other patient-relevant measures and endpoints

    Research & Data

    Tamas Agh

  • SISAQoL-IMI educational workshop

    Research & Data

    Silene t'Seldam and Madeleine Pe

  • LUNCH

  • Access, pricing & regulatory health economics advanced

    Healthcare Systems, Policy, & Access

    Zack Pemberton- Whiteley

  • Snowball Fight and Farewell for SmartStart, including Coffee Break

    Hans Schuerer and Ananda Plate

  • Financial sustainability

    Advocacy Tools & Skills

    To be announced

  • Not being the victim of hidden agendas

    Advocacy Tools & Skills

    To be announced

  • DINNER

Day 4

  • EBA advanced: Setting up own research/ gather + use patient data; Spotlight on new technologies

    Research & Data

    Zack Pemberton-Whiteley

  • European Health Data Space that works for patients

    Research & Data

    Gilliosa Spurrier-Bernard

  • COFFEE BREAK

  • How to influence the research agenda & getting involved in external research projects

    Research & Data

    Bettina Ryll

  • LUNCH

  • Inequalities Advanced: Tackling and Addressing Inequalities

    Healthcare Systems, Policy, & Access

    To be announced

  • Wrap-up Session, Networking, Poster Session, including Coffee and Snacks

  • Farewell and Departures for Everyone

**Topics and speakers subject to change

Supporters

The WECAN Academy 2023 event is hosted by the European Patient Advocacy Institute gUG on behalf of WECAN. Funding was obtained from the following funders. Supporters had no role in the development of this programme.