About Paula Capparelli

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So far Paula Capparelli has created 7 blog entries.

Patient Advocates Calling: join the WECAN EBA group!

Statement I 26 August 2024 Are you a patient advocate or aspiring to be one? Become a WECAN Evidence-Based Advocacy group member! The WECAN Evidence-Based advocacy group is excited to announce the election of new members. To find more information about what the group does, click HERE or contact

Phase 2 extension close to completion!

Research I 7 March 2025 Phase 2 extension close to completion! In this phase, we updated details on the geographical distribution of clinical trials, the use of Patient-Reported Outcome Measures (PROMs), and trends in publishing Patient-Reported Outcomes (PROs). These findings enhance our understanding of clinical trial accessibility and highlight the importance of

Advancing Research & Patient Advocacy with a Novel Methodology

Research I 7 March 2025 Advancing Research & Patient Advocacy with a Novel Methodology To generate knowledge, we had to create our own tools, and we hope they are useful for advocacy in other areas too! In collaboration with Syreon, we are proud to be pioneers in developing a novel methodology for

WECAN Academy 2025 – United in Knowledge, Stronger Together

Fiumicino (Rome), Italy | 26-29 June 2025 WECAN Academy 2025 – United in Knowledge, Stronger Together As WECAN approaches its 10th anniversary, we are thrilled to announce that preparations for WECAN Academy 2025 are in full swing. This flagship training event will take place June 26–29, 2025, in Fiumicino (Rome), Italy, bringing

Recap of the WECAN Academy 2024 Training Event

Capacity Building I 5 August 2024 Recap of the Transformative WECAN Academy 2024: Empowering Cancer Patient Advocates Worldwide This year, the WECAN Academy brought together close to 90 dedicated advocates from 32 countries for an immersive and transformative experience. Attendees had the opportunity to select from two tailored programs:

WECAN officially becomes a legal entity

Statement I 19 May 2025  WECAN has officially become a legal entity   We are proud to announce that cancer patients across Europe now have an even stronger ally: 𝗪𝗘𝗖𝗔𝗡 𝗵𝗮𝘀 𝗼𝗳𝗳𝗶𝗰𝗶𝗮𝗹𝗹𝘆 𝗯𝗲𝗰𝗼𝗺𝗲 𝗮 𝗹𝗲𝗴𝗮𝗹 𝗲𝗻𝘁𝗶𝘁𝘆! What started 10 years ago as an informal network of powerful pan-European patient organisations, initiated by

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