Evidence-Based Advocacy

Evidence-Based Advocacy: Strategy & Design Workshop

An interactive training program for patient advocates who want to lead a data generation project. This immersive course gives participants the opportunity to learn and connect with expert advocates in evidence-based advocacy. The program is composed of online learning modules, virtual workshops, and group tutoring sessions.


The Evidence-Based Advocacy: Strategy & Design workshop extends the learnings from our Evidence-Based Advocacy Fundamentals course. This first stage of the EBA programme provided learners with a solid and comprehensive education and knowledge base around evidence-based advocacy and how to develop and execute a plan for gathering, analyzing, publishing, and using evidence in advocacy.

Now, learners can take this education even further and put the theory into practice.

The Evidence-Based Advocacy: Strategy & Design workshop provides the tools and resources for participants to develop an individual real-world plan for an evidence-generation project in their therapeutic or policy area.

Who is it for?

For patient advocates who have some knowledge of evidence-based advocacy and would like to lead or take part in an evidence-generation study within their organisation or policy area. This course is open to one nominee per WECAN member organisation.

What does it cover?

This course will help advocates draft, plan, and refine an evidence-generation project that is ready to be launched or used as a template for future projects. At the end of the course,  participants will receive a facilitator tool-kit to replicate this workshop within their organisations.

Key learning outcomes

  • Defining the research question
  • Defining the methodology
  • Developing a questionnaire
  • Applying knowledge directly to current gaps in research
  • Understanding ethics and GDPR considerations

On-demand Learning

Learners get access to a private course on the WECAN Academy online learning platform. There they can find resources, download templates, and review homework assignments. Within the course, learners can connect within the private discussion board.

Virtual Workshops

The course is composed of three virtual workshops where learners can present and test their ideas.

Workshop 1: Research question- This workshop focuses on the research question: what is the exact problem learners want to collect data on.

Workshop 2: Methodology & case study- Participants are guided toward choosing and designing the right methodology for their research project.‚Äč

Workshop 3: Pitch your project- This session creates an opportunity for learners to present and critically discuss their research project with fellow participants and the tutors of the course.

Tutoring Sessions

Tutoring sessions are open format sessions where learns can get advice from experts within the patient community. Some tutoring sessions have specific topics, e.g., GDPR considerations, ethics, survey design. Tutoring sessions facilitate open dialog between learners and experts were best and worst practices are shared.


The Evidence-Based Advocacy: Strategy & Design Workshop is hosted by the European Patient Advocacy Institute gUG on behalf of WECAN. Funding was obtained from the following funders. Supporters had no role in the development of this project