The leading capacity-building event for cancer patient advocates is back in person.

STAY TUNED !!!

4

DAYS

3

TRACKS

25+

SESSIONS

ABOUT THE EVENT

After almost three years of virtual training, the leading capacity-building event for cancer patient advocates returns to a face-to-face event.

The WECAN Academy was initiated in 2019 when two leading capacity-building programs in patient advocacy were combined, the WECAN Smartstart for new and novice patient advocates and WECAN Masterclass for expert patient advocates. The WECAN Academy offers training for advocates in all skill sets in the three knowledge pillars “Advocacy Tools & Skills”, “Healthcare Systems, Policy and Access,” and “Research and Data”.

Within these pillars and the 4 days of training in July 2023, our attendees will experience an increased level of complexity.

This unique format gives an opportunity to those patient advocates who are starting their journey in the field of advocacy to learn the basics and meet the experts as well as providing a space for networking. For the more experienced patient advocates, the WECAN Academy 2023 training event will offer room to exchange knowledge and dig into the topics that help to make patient advocacy even more effective.

The sessions will be interactive, straight to the point and applicable to many different areas of patient advocacy

VIEW THE AGENDA

LEARN

Hear from expert patient advocates as they share best practices and experiences within the three pillars of knowledge.

COLLABORATE

Meet with patient advocates from many different disease areas that comprise the European cancer patient community.

ADVOCATE

Leave the event equipped with the knowledge to make an impact and drive change in healthcare for cancer patients.

AGENDA

Day 1

  • Welcome Coffee and Registration for the Event

    -

  • Setting the Scene: Advocacy Principles

    -

    Advocacy Tools & Skills

    Hans Scheurer, WECAN Chair, MPE, Jan Geissler, WECAN Past Chair, CMLAN and Sara Dederichs, EPAI

  • Drug Development Basics

    -

    Research & Data

    Maria Dutarte, EUPATI and Jan Geissler, WECAN Past Chair, CMLAN, ALAN

  • LUNCH

    -

  • Access and Regulatory Basics

    -

    Healthcare Systems, Policy, & Access

    Kate Morgan, MPE

  • Inequalities Basics: Mapping and Understanding Patients Rights

    -

    Healthcare Systems, Policy, & Access

    Tamás Bereczky, Patvocates

  • COFFEE BREAK

    -

  • Engaging Your Patient Community

    -

    Advocacy Tools & Skills

    Anita Kienesberger, CCI

  • Develop Good Content, Presentations and Patient Materials

    -

    Advocacy Tools & Skills

    Judith Taylor, TCA

  • Setting-up Disease Specific Educational Programmes

    -

    Advocacy Tools & Skills

    Tamás Bereczky, Pavocates

  • Welcome and Registration for Masterclass

    -

  • Reception

    -

    Foyer Outside Conference Room

  • DINNER

    -

    Leonardo Hotel Restaurant

Day 2

  • Evidence-Based Advocacy Basics

    -

    Research & Data

    Zack Pemberton-Whiteley, ALAN

  • Reading and Interpreting Scientific Data: Part 1

    -

    Research & Data

    Gilliosa Spurrier-Bernard, MPNE

  • COFFEE BREAK

    -

  • Reading and Interpreting Scientific Data: Part 2

    -

    Research & Data

    Gilliosa Spurrier-Bernard, MPNE

  • Biobanking from the Patient Perspective

    -

    Research & Data

    Derick Mitchell, IPOSSI

  • LUNCH

    -

  • Health Economics Basics: Concepts and Common Problems

    -

    Healthcare Systems, Policy, & Access

    Zack Pemberton-Whiteley, ALAN

  • Healthcare Ecosystems and Stakeholder Management

    -

    Healthcare Systems, Policy, & Access

    Bettina Ryll, MPNE

  • COFFEE BREAK

    -

  • NGO Governance: Managing a Crisis in Your Organisation

    -

    Advocacy Tools & Skills

    Ananda Plate, MPE

  • NGO Marketing and Communications: Media, Social Media, and Communication with Stakeholders

    -

    Advocacy Tools & Skills

    Katie Rizvi, YCE

  • DINNER

    -

    Leonardo Hotel Biergarten

Day 3

  • How Do We Ensure Patient-Centricity in Clinical Trials?

    -

    Research & Data

    Bettina Ryll, MPNE and Rachel Giles, IKCC

  • Jam Session on Hot Topics in Oncology

    -

    Research & Data

    Rachel Giles, IKCC and Bettina Ryll, MPNE

  • COFFEE BREAK

    -

  • Patient Reported Outcomes and Other Patient-Relevant Measures and Endpoints

    -

    Research & Data

    Tamas Agh, Syreon

  • Patient Reported Outcomes in Oncology Studies: Intercurrent Events

    -

    Research & Data

    Silène ten Seldam, Elektra Papadopoulos, Madeline Pe, Ahu Alanya, SISAQOL-IMI

  • LUNCH

    -

  • Health Economics Advanced: Patient Input into Health Technology Assessment

    -

    Healthcare Systems, Policy, & Access

    Neil Bertelsen, HTAi

  • Snowball Fight and Farewell for SmartStart, including Coffee Break

    -

    Ananda Plate, MPE and Sara Dederichs, WECAN Academy PM, EPAI

  • Financial Sustainability of Your Organisation

    -

    Advocacy Tools & Skills

    Jan Geissler, CMLAN

  • Not being the Victim of Hidden Agendas

    -

    Advocacy Tools & Skills

    Natacha Bolaños, LC

  • DINNER

    -

    Oberschweinstiege Restaurant

Day 4

  • Evidence-Based Advocacy Advanced: Setting-up Research Projects, How to Gather and Use Patient Data; Spotlight on New Technologies

    -

    Research & Data

    Zack Pemberton-Whiteley, ALAN

  • European Health Data Space that Works for Patients

    -

    Research & Data

    Gilliosa Spurrier-Bernard, MPNE

  • COFFEE BREAK

    -

  • How to Influence the Research Agenda and Get Involved in External Research Projects

    -

    Research & Data

    Bettina Ryll, MPNE

  • LUNCH

    -

  • Inequalities Advanced: Tackling and Addressing Inequalities

    -

    Healthcare Systems, Policy, & Access

    Neil Bertelsen, HTAi

  • WECANHub Networking and Poster Session

    -

  • Farewell and Departures for Everyone

    -

**Topics and speakers subject to change

Click here to download the full programme.

There is no shortcut to knowledge. Patient advocates need to continuously build their skills and expertise in all different areas of need.

Have questions about the WECAN Academy 2023?

Download the FAQ below.

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Supporters

The WECAN Academy 2023 event is hosted by the European Patient Advocacy Institute gUG on behalf of WECAN. Funding was obtained from the following funders. Supporters had no role in the development of this programme.