Evidence-based advocacy

One of the key activities of a patient organisation is to to develop content and information materials that is understandable and accessible, usually to a lay audience, but also targeted towards other actors in the healthcare system. Is is therefore helpful to understand the basic principles of good information, stylistic tipps, and the difference of generating content for online and offline media.

See also the WECAN training programme on “Evidence-Based Advocacy: Evidence generation and publication”

Presentations at the WECAN Academy 2019

Evidence-based advocacy for experts: new technologies to gather data and patient preference studies

Presenter: Denis Costello, EURORDIS & Ananda Plate, Myeloma Patients Europe

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