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WECAN Academy Knowledge Base
Advocacy Tools & Skills
Advocacy Tools & Skills
Good NGO governance and ensuring transparency and integrity
Presentations skills: How not to bore your audience to death
GDPR and data protection in patient advocacy
How to develop good content and patient materials - print, online and video
Financial Management of Non-Profit Patient Organisations
Healthcare Systems, Policy & Access
How and why does access to treatment and care differ between EU Member States, and how to address it in advocacy and policy?
Affordability and sustainability. Difference between HTA and payer perspective. What is Europe's challenge? How to influence reimbursement decisions as a patient advocate?
Pre-approval access: to clinical trials (including cross-border, pre-approval, post-approval, and advocacy action
Different perspectives on pricing and value of cancer medicines, including specific challenges related to combination therapies
Healthcare ecosystem and stakeholder management
Research & Data
Patient-reported outcomes, and other patient-relevant measures and endpoints
Basics of biobanks and registries – types, value, challenges, relevance for patient advocacy
How to improve patient relevance of clinical trials, and reviewing trial protocols
Interpreting scientific data - identifying gaps, flaws and cheats
How therapy development works, the development lifecycle, endpoints, trial design, patient engagement in research
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Advocacy Tools & Skills
How to develop good content and patient materials - print, online and video
Financial Management of Non-Profit Patient Organisations
Evidence-Based Patient Advocacy: Creating evidence for advocacy impact
Good NGO governance and ensuring transparency and integrity
Presentations skills: How not to bore your audience to death
GDPR and data protection in patient advocacy
