Education, Research I 26 August 2024 WECAN’s Evidence-Based Advocacy Program: How Cancer Patient Advocates Ideated a Survey Where it all began: the workshop On January 17th-19th 2024, a group of 40 patient advocates, carers, and clinicians from 20 European countries have met in Munich, Germany, to participate in a workshop. Industry stakeholders
Research I 7 March 2025 Phase 2 extension close to completion! In this phase, we updated details on the geographical distribution of clinical trials, the use of Patient-Reported Outcome Measures (PROMs), and trends in publishing Patient-Reported Outcomes (PROs). These findings enhance our understanding of clinical trial accessibility and highlight the importance of
Research I 7 March 2025 Advancing Research & Patient Advocacy with a Novel Methodology To generate knowledge, we had to create our own tools, and we hope they are useful for advocacy in other areas too! In collaboration with Syreon, we are proud to be pioneers in developing a novel methodology for
Research I 11 June 2023 Research questions of phase 2 established Where are we at? Research questions have been drafted by the steering committee and have been reviewed and entire oncology and hematological community ensuring that the data outcomes are suited to their needs and answer questions they have around the three main
Research I 11 June 2023 Phase 2 kick off Phase 1 completing and now moving to Phase 2 - analysis nd of phase 1 resulted in the collection of all interventional studies (phase 2,3 or 4) in each disease area. Obtaining the data from either the clinical trial registry, ClinialTrials.gov or EU Clinical
Research I 03 Jul 2023 EuroACT poster presented at the WECAN Academy WECAN (Workgroup of European Cancer Patient Advocacy Networks) presents a poster on the European Atlas on Clinical Trials in Cancer and Hematology at the WECAN Academy 2023. EuroACT Phase 1 focuses on data gathering to identify the clinical trial landscape
Research I 25 May 2023 EuroACT Phase 1 nears completion Where are we at? The end of Phase 1 Task 1 has resulted in 1262 Patient Related Outcomes (PROs) identified in the targeted literature review across all disease areas. The list of PROs is currently being reviewed by patient organisations in each
Research I 08 Feb 2023 EuroACT Phase 1 meets halfway point The second steering committee meeting concerning the first task within Phase 1, was held on the 1st of February. The aim of task 1 was to identify the most relevant peer-reviewed articles on PROM use practices in the field of oncology
Research I 16 Nov 2022 EuroACT kicks off with a pilot phase in breast cancer On October 14, 2022, the European Atlas on Clinical Trials in Cancer and Hematology research project held its first Steering Committee meeting. The steering committee provides scrutiny and guidance to this project and represents the 27 organisations involved.