Clinical trials are an important way of accedd to treatment for cancer patients. Patient advocacy groups have to understand why clinical trials matter, how to find clinical trials, how to select clinical trials, how to shape clinical trials and how to find, select and shape trials that are actually good for their patients.
Presentation at the WECAN Academy 2019:
How to improve patient relevance of clinical trials, and reviewing trial protocols
Presenter: Bettina Ryll, Melanoma Patients Netword Europe
The following presentation held at the WECAN Academy 2019 will help you to understand:
- that many trials ask the wrong questions or are badly designed, also because they are designed without meaningful input from patients and clinicians
- indicators that may differentiate relevant from irrelevant clinical trials
- what the key elements of a trial protocol are
- a “cookbook” which elements of a trial protocol deserve specific attention by patient advocates, and why
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