Presentation at the WECAN Academy 2019:
How and why does access to treatment and care differ between EU Member States, and how to address it in advocacy and policy?
Presenter: David Haerry, EUPATI
The following presentation held at the WECAN Academy 2019 will help you to understand:
- How and why does access to treatment and care differ between EU MS – examples and inequalities
- Why they shouldn’t just focus on pricing as the key access barrier. Different types of barriers to access to treatment and care – reimbursement and HTA is just one barrier out of many
- How to address this in patient advocacy with policy markers, regulators, HTA bodies, clinicians
- What their role and responsibility in this – and how not to fall into the trap of easy solutions in a complex problem
- Why barking up the wrong tree is counterproductive – understand the barrier, define an advocacy goal, and go for it with evidence-based advocacy – instead of complaining about access issues to the wrong party
- Access experiences in HIV versus Hepatitis C treatments
- How to lobby for access – Swiss Hepatitis Strategy as example
- How to build an effective access monitoring tool: MPE example
Resources
- EUPATI toolbox: eupati.eu
- WHO: euro.who.int/en/publications/abstracts/medicines-reimbursement-policies-in-europe
Get the facts together
- MPE Access Atlas
Position papers:
- https://www.eurordis.org/news/rare-disease-community-calls-radical-change-improve-patients-access-medicines
- https://www.eurordis.org/publication/early-access-medicines-europe-compassionate-use-become-reality